Bethany ( 20-9-96 ) was about 3 years of age when she developed Primary Dystonia over eight hours, the day before she was running, playing etc, the next day she was in a wheelchair and dying in front of us, now Bethany is 13 years.

This mechanical system ( DBS ) Deep Brain Stimulation in their frail body keeps both Leanna & Bethany alive and breathing.

Leanna ( 27-12-94 ) was 3 years of age when she developed Primary Dystonia over six months, now Leanna is 15 years and has Parkinson disease as well, which is getting worse. Leanna now has major problems in eating, drinking and talking. Leanna is also dying fom this unique illness.

What is Primary Dystonia?

This is a very disabling neurological condition where there is excessive contraction and severe, agonising and excrutiating pain in the muscles and whole body every day. In layman terms Primary Dystonia is cross between Cerebal Palsy and Parkinson.

Certain Brain Specialists in the world who we have personally seen with Leanna and Bethany feel very strongly that Immunization ( Triple Antigen ) MMR injections has been the Cause of Leanna and Bethany's severe, and life threatening medical problems from early in their life.

What parts of the body does Primary Dystonia affect?

Movements are unable to be normally controlled, the limbs become extremely stiff and the whole body is severely twisted into abnormal postures.

The story so far

To view the story of the Mills sisters click here.

Writer Wanted

Ghost Writer needed to help a father write a harrowing story/tale that needs to be told, with tragedy, drama, love, mystery, the unknown, and the father's very sick daughters who only had days to live as Doctors could not help at all with Bethany's severe pain and twisted body any more. When published, a percentage of sales revenue will go to the ghost writer.

2010 - This years chapter

This year our committee is trying very hard to gain a building block of land to build a suitable disability home for Leanna and Bethany to help with their very unique illness. We are trying to raise much needed funds by the way of Donations and having in the next few months two golf days coming up, and a trivia night in July 2010.

Plans for Leanna and Bethany design disability home.

The plans will be up on the website shortly - be sure to check back.

Travelling to a Neurology Hospital called Hopital Gui De Chauliac in Montepellier "France" two or three times a year is very stressful on Leanna and Bethany's health and wellbeing and our family let alone the enormous cost (In the Thousands each time) so we can keep doing this travel year after year after year. If we do not travel to Montpellier Hospital every time when we need to, Leanna and Bethany would die, as specialists in this hospital in Montpellier have the most experience in Children with Primary Dystonia, and also with a delicate and major operation called Deep Brain Stimulation (DBS).

Australian Brain Specialists have no or very little experience with children with this medical condition. The USA, England Specialists can not help us, only France Brain Specialists have the most experience in this field of medicine, and only France Specialists can keep both Leanna and Bethany alive and breathing. The Australian Government does help, BUT as always there is no guarantee when we need to get back to France for medical help for Leanna and Bethany that the government will be there to help.

Both Leanna and Bethany are the only children in Australia with this medical system called (DBS) inserted in their frail body for their certain unique medical problem, which keeps them alive every day, but no guarantees.

Medical Reports & Other Documents

My Monthly Parent Views

This is my first month that we have started this Web Page in regards to Leanna and Bethany my daughters who have disabilities (I hope you enjoy it) and in saying this every month I as the father will write my parent views, which will be a few words each month, such as:

Shopping centres who don't go the extra mile for disabilities.
Well known food outlets in Newcastle who can only scrape up one disabled car park.

A Current Affair video

Photo Gallery

Click here to view this gallery.

Past Newspaper clips

Thankyou

To everyone who have helped and supported Leanna & Bethany over the years. A big thank you again.

We are a fully Registered Charity with Tax Endorsement as a Deductible Gift Recipient (DGR) $2.00 and over are Tax Deductible.

If you want to donate from another Country than Australia you will need this Institution Identifier Code (BIC) (SWIFT) ASLLAU2CGBS

Postal address is: PO BOX 8005, Marks Point Post Office Marks Point Road, Marks Point NSW 2280 Australia

Email address is: leanna_bethany@bigpond.com

Mobile number is: 0417657120

Greater Building Society LTD
300 Main Road, Cardiff NSW 2285
Leanna & Bethany Primary Dystonia with DBS Chairty Foundation.

For Electronic Payments, please quote the Account number as
Account #: 717090322
BSB: 637-000

Your support is greatly appreciated.

Board of Directors and Chairman of this Registered Charity Contact Details

Mr Clayton Whitely - Director
Email: claypw@optusnet.com.au
Phone: 0425 274 784

Kim Bradley - Director
Email: blueheal@optusnet.com.au
Phone: 0412 278 927

Mr Graeme Stevens - Director
Email: blueheal@optusnet.com.au
Phone: 0412278927

Mr Warren Charles - Chairman of the Board and Justice of the Peace
Email: warrencharles@acnrep.com.au
Phone: 0414496565

Barry Lindbeck - Accountant and Treasurer
Email: barry@lindbeckpartners.com
Phone: (02) 4954 4611

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